GENEration Hope

Description

GENEration Hope follows the people, science, and technologies changing what is possible for rare disease families. | About A turning point in medicine, told through people. GENEration Hope exists to tell the story of a turning point in medicine. For families living with rare genetic disorders, the future has often been framed around uncertainty. But across labs, clinics, startups, foundations, and patient communities, new tools are emerging that are changing what families can imagine. Work in progress Ron & Evie's story GENEration Hope was created by Ron, a rare disease dad and filmmaker, after seeing how quickly the world of genetic medicine was changing. His daughter Evie has Phelan-McDermid Syndrome, and her story is part of the reason this project exists. Why now Gene therapies are moving into clinical

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podcast